Anomaly Syndrome 22 documentary by Quinn Bradlee
A while ago I heard about a documentary on velo-cardio-facial syndrome that was being made by Quinn Bradlee, the son of Washington Post vice-president Benjamin C. Bradlee and journalist Sally Quinn. Quinn Bradlee was diagnosed with VCFS in his teens after a series of seemingly unrelated health problems which perplexed his parents.
Anyways, the documentary is being hosted by Upstate Medical University, and as far as I can tell you have to watch it on their site here.
As I’ve said elsewhere (and as the documentary repeats), kids with VCFS often bear a striking resemblance to one another. What’s interesting to me is that some of the kids in the documentary bear a striking resemblance to me. My daughter’s geneticists have advised me to get tested for VCFS, but I never have. I’ve been virtually free of the laundry list of symptoms and health problems which serve as markers for a potential VCFS case, so I never bothered. I may have to re-think that, but I still find it hard to imagine I could have the syndrome with so few symptoms present.
Some other articles on Quinn Bradlee and his documentary (old but still informative):
10 Questions: What is VCFS? – interview between Katie Couric and Quinn Bradlee
Newspaper Editor’s Son Tackles His Own Disease In Film
What My Son Taught Me About God by Sally Quinn
Newspaper Editor’s Son Tackles His Own Disease In Film
What My Son Taught Me About God by Sally Quinn
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